CODI: Cornucopia of Disability Information

References for Aging with a Disability: A Life Course Perspective

REFERENCES

================

Aging with a Disability: A Life Course Perspective 

Baum HM, Manton KG (1987). National trends in stroke-related mortality:  A 
comparison of multiple cause mortality data with survey and  other health 
data. The Gerontologist, 27:293-300.

Dauer C (1948). Trends in age distribution of poliomyelitis in the United 
States. American Journal of Hygiene, 48:133-146.

Davis F (1963). Passage through crisis:  Polio victims and families. New 
York:Bobbs-Merrill.

Eisenberg MG, Sutkin LC, Jansen MA (1984). Chronic illness and disability 
through the life span:  Effects on self and family. New York: Springer 
Publishing.

Erikson E, Erikson J, Kivnik H (1986). Vital involvement in old age. New York: 
W.W. Norton.

Fisks M, Chiriboga D (1990). Change and continuity in adult life. London: 
Josey-Bass.

Halstead LS, Rossi CD (1985). New problems in old polio patients:  Results of 
a survey of 539 polio survivors. Orthopedics, 8:845-850.

Kotre L (1984). Outliving the self:  Generativity and the interpretation of 
lives. Baltimore, MD: Johns Hopkins University Press.

Maurer JR, Strasberg PD (1989). Building a new dream:  A family guide to 
coping with chronic illness and disability. Reading, MA: Addison Wesley, Inc.

Mulder DW (1992). Post-polio syndromeÄpast, present, and future. In
TL Munsat (Ed.) Post-polio syndrome (pp. 1-8). Boston:
Butterworth-Heinemann.

Norris VK, Stephens-Parris MA, Kinny JM (1990). The impact of family 
interactions on recovery from stroke:  Help or hindrance? The Gerontologist, 
30:535-542.

Scheer J (1984). They act like it was contagious. In SC Hey, G Kiger, J Seidel 
(Eds.) Social aspects of chronic illness, impairment, and disability (pp. 
62-69). Salem, OR: Willamette University Press.

Scheer J, Groce N (1988). Impairment as a human constant:  Cross-cultural and 
historical perspectives on variation. Journal of Social Issues, 44:23-37.

Scheer J, Luborsky ML (1991). The cultural context of polio biographies. 
Orthopedics, 14:1173-81.

Task Force on Stroke Impairment, Disability and Handicap (1990). Symposium 
Recommendations for Methodology in Stroke Outcome Research, Stroke, 
21(suppl.II):68-73.

Treischmann RB (1987). Aging with a disability. New York: Demos Publications.

When stroke strikesÄInformation for the family:  The road backÄA 
resocialization program. Stroke Association of Southern California, 2001 S. 
Barrington Ave., Suite 308, Los Angeles, CA 90025.

Zola IK (1989). Aging and disability:  Toward a unified agenda. Journal of 
Rehabilitation, 28:6-11.

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Aging While Disabled: Personal Perspectives

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Under the Magnifying Glass

Beisser A (1989). Flying without wings:  Personal reflections on being 
disabled. New York: Doubleday & Co.

Forbes C (1986). Imagination:  Embracing a theology of wonder. Portland, OR: 
Multnomah Press.

Register C (1987). Living with a chronic illness:  Days of patience and 
passion. New York: Free Press.

Strong M (1988). For the well spouse of the chronically ill. Boston: Little, 
Brown & Co.

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My Stroke of Luck

Be stroke smart. Newsletter of the National Stroke Association, 300 E. Hampden 
Ave., Suite 240, Englewood, CO 80110-2654.

Gaining ground. Newsletter of the American Heart Association, 7272 Greenville 
Ave., Dallas, TX 75321-4596.

Josephs A (1992). Stroke:  An owner's manual. Amadeus Press, P.O. Box 13011, 
Long Beach, CA 90803.

The stroke connection. Newsletter of the Courage Stroke Network, 3915 Golden 
Valley Rd., Golden Valley, MN  55422.

=================

The Late Effects of Polio: From Taming a Mysterious Syndrome to
Managing the Ravages of Time

Agre JC, Rodriguez AA (1991). Neuromuscular function in polio survivors. 
Orthopedics, 14:1343-1347.

Bruno RL, Frick NM, Cohen J (1991). Polioencephalitis, stress, and the 
etiology of post-polio sequelae. Orthopedics, 14:1343-1347.

Einarsson G (1991). Muscle conditioning in late poliomyelitis. Arch Phys Med 
Rehabil, 72:11-14.

Maynard FM, Roller S (Eds.) (1992). Stay well: The polio network's manual for 
a health promotion program. Polio Network, Inc. 2877 So. Ennis, Ithaca, MI  
48847 ($35.00 per copy).

Maynard FM, et al (1990). The late effects of polio: A model for the 
identification and assessment of preventable secondary disabilities (Final 
Report). National Technical Information Service, US Department of Commerce, 
5285 Port Royal Rd., Springfield, VA  22161.

Pachter BR, Eberstein A (1991). A rat model of the post-polio motor unit. 
Orthopedics, 14:1367-1373.

Rudman D, Shetty KR (1991). Growth hormone and the post-poliomyelitis 
syndrome. Course supplement, Vol 1 (pp 167-172). American Academy Physical 
Medicine and Rehabilitation annual meeting, Washington, DC.

Sharief MA, Phil M, Hentges R, Ciardi M (1991). Intrathecal immune responses 
in patients with the post-polio syndrome. N Engl J Med, 325:749-755.

Trojan DA, Cashman NR (1989). Treatment of fatigue in the post poliomyelitis 
syndrome with pyridostigmine. Arch Phys Med Rehabil, 70:A42.

Trojan DA, Gendron D, Cashman NR (1991). Electrophysiology and 
electrodiagnosis of the post-polio motor unit. Orthopedics, 14:1353-1361.

Windebank AJ, Litchy WJ, Daube JR, et al. (1991). Late effects of paralytic 
poliomyelitis in Olmsted County, MN. Neurology, 41:501-507.

================

Welcomed New Perspectives in Meeting the Challenges of Living After Stroke 

Resources:

Stroke Association of Southern California, 2001 Barrington Ave, Suite 308, Los 
Angeles CA 90025. (310) 575-1699.

Books:

Edwards D, Nash K (1992).  Prime moves:  Low impact exercises for mature 
adults.  Garden City Park, NY: Avery Publishing Group.

Josephs A (1992). Stroke: An owner's manual. Amadeus Press, PO Box 13011, Long 
Beach CA 90803.

Mesulam M (1985). Principles of behavioral neurology. Philadelphia: F. A. 
Davis.

Payor L (1988). Medicine and culture. New York: Penguin Books.

Treischmann RB (1987).  Aging with a disability.  New York: Demos 
Publications.

================

Coping with Disability: A Challenge at All Ages

Friedenberg DL, et al (1989). Post-poliomyelitis syndrome: Assessment of 
behavioral features. Neuropsych, Neuropsychol, and Behav Neurol, 2:272-281.

Mahoney CW, Estes CL, Hermann JE (Eds.)  Toward a unified agenda:  Proceedings 
of a national conference on disability and aging.  San Francisco: Institute 
for Health and Aging, University of California.

Treischmann RB (1987). Aging with a disability. New York: Demos Publications.

=================

Future Perspectives: Meeting the Common Challenges of Aging with a Disability 

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Concerns of the Polio Community

Maynard F (1991).  Recognizing typical coping styles of polio survivors can 
improve re-rehabilitation.  American Journal of Physical Medicine and 
Rehabilitation, 70:70-72.

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Concerns of the Stroke Community

Resources:

American Heart Association, 3550 Wilshire Blvd., Suite 500, Los Angeles, CA  
90010. (213) 385-4231.

Courage Stroke Network, 3915 Golden Valley Rd., Golden Valley, MN  55422. 
(800) 553-6321.

National Stroke Association, 300 E. Hampden Ave., Suite 240, Englewood, CO 
80110-2654. (800) 787-6537.

Stroke Association of Southern California, 2001 S. Barrington Ave., Suite 308, 
Los Angeles, CA  90025. (310) 575-1699.

Book:

Josephs A (1992). Stroke:  An owner's manual. Amadeus Press, P.O. Box 13011, 
Long Beach, CA  90803.


Promoting Personal Growth Through the Disability Experience

Vash C.  Personality and adversity:  Psycho-spiritual aspects of 
rehabiliation.  To be published in March 1994.  New York: Springer Publishing 
Company.

Caregiver Stress: Causes and Treatment 

Caregiver Stress and Health

Resources:
  
Beach Center on Families and Disability, University of Kansas, 3111 Hayworth 
Hall, Lawrence, KS 66045. (913) 864-7600.

The Family Survival Project, 425 Bush Street, Suite 500, San Francisco, CA 
94108. (415) 434-3388.

Bibliography: 

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distress among caregivers of dementia patients. Psychology and Aging, 
3:245-248.

Aronson MK, Lipkowitz R (1981). Senile dementia, Alzheimer's type:  The family 
and the health care delivery system. Journal of the American Geriatrics 
Society, 29:568-571.

Baile V, Norbeck JS, Barnes LE (1988). Stress, social support, and 
psychological distress of family caregivers of the elderly. Nursing Research, 
37:217-222.

Barusch AS, Spaid WM (1988). Gender differences in caregiving:  Why do wives 
report greater burden? The Gerontologist, 29:667-676.

Bishop DS, Epstein NB, Leitner GI, Miller IW, Srinivasan SV (1986). Stroke:  
Morale, family functioning, health status, and functional capacity. Archives 
of Physical Medicine and Rehabilitation, 67:84-87.

Brane G (1986). Normal aging and dementia disordersÄCoping and crisis in the 
family. Progress in Neuropsychopharmacology and Biological Psychiatry, 
10:287-295.

Brody EM (1985). Parent care as a normative family stress. The Gerontologist, 
25:19-29.
Brody SJ, Poulshock SW, Masciocchi CF (1978). The family caring unit:  A major 
consideration in the long-term support system. The Gerontologist, 18:556-561.

Bunting SM (1989). Stress on caregivers of the elderly.  Advances in Nursing 
Science, 11:63-73.

Cantor, MH (1983). Strain among caregivers:  A study of experience in the 
United States. The Gerontologist, 23:597-604.

Chenoweth B, Spencer B (1986). Dementia:  The experience of family caregivers. 
The Gerontologist, 26:267-271.

Chiriboga DA, Weiler PG, Nielsen K (1989). The stress of caregiving. Journal 
of Applied Social Sciences, 13:119-141.

Cleary BL (1987). Alzheimer's disease:  Specific stressors and strategies 
associated with caregiving. The Southwestern:  The Journal for Aging in the 
Southwest, 4:36-47.

Cohen D, Eisdorfer C (1988). Depression and family members caring for a 
relative with Alzheimer's disease. Journal of the American Geriatric Society, 
36:885-889.

Coppel DB, Burton C, Becker J, Fiore J (1985). Relationships of cognitions 
associated with coping reactions to depression in spousal caregivers of 
Alzheimer's disease patients. Cognitive Therapy and Research, 9:253-266.

Cutler L (1985).  Counseling caregivers. The Gerontologist, Fall:53-58.

Deimling GT, Bass DM (1986). Symptoms of mental impairment among elderly 
adults and their effects on family caregivers. Journal of Gerontology, 
41:778-784.

Drinka TJK, Smith JC, Drinka PJ (1987). Correlates of depression and burden 
for informal caregivers of patients in a geriatrics referral clinic. Journal 
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Eagles JM, Graig A, Rawlinson F, Restall DB, Beattie JAG, Besson JAO (1987). 
The psychological well-being of supporters of the demented elderly. British 
Journal of Psychiatry, 150: 293-298.

Eisenberg MG, Sutkin LC, Jansen MA (1984). Chronic illness and disability 
through the life span:  Effects on self and family. New York: Springer 
Publishing.

Fengler AP, Goodrich N (1979). Wives of elderly disabled men:  The hidden 
patients. The Gerontologist, 19:175-183.

Fiore J, Becker J, Coppel DB (1983). Social network interactions:  A buffer or 
a stress. American Journal of Community Psychology, 11:423-439.

Fiore J, Coppel DB, Becker J, Cox GB (1986). Social support as a multifaceted 
concept:  Examination of important dimensions for adjustment. American Journal 
of Community Psychology, 14:93-111.

Fitting M, Rabins P, Lucas MJ, Eastham J (1986). Caregivers for dementia 
patients:  A comparison of husbands and wives. The Gerontologist, 26:248-252.

Gallagher D, Rose J, Rivera P, Lovett S, Thompson LW (1989). Prevalence of 
depression in family caregivers. The Gerontologist, 29:449-456.

Gaynor S (1989). When the caregiver becomes the patient. Geriatric Nursing, 
10:121-123.

George KL, Gwyther L (1986). Caregiver well-being:  A multidimensional 
examination of family caregivers of demented adults. The Gerontologist, 
26:253-259.

Gilhooly MLM (1984). The impact of care-giving on caregivers:  Factors 
associated with the psychological well-being of people supporting a dementing 
relative in the community. British Journal of Medical Psychology, 57:35-44.

Given CW, Collins CE, Given BA (1988). Sources of stress among families caring 
for relatives with Alzheimer's disease. Nursing Clinics of North America, 
23:69-82.

Goldman LS, Luchins DJ (1984). Depression in the spouses of demented patients. 
American Journal of Psychiatry, 141(11):1467-1468.

Goldstein MS, Hurwicz M (1989). Psychosocial distress and perceived health 
status among elderly users of a health maintenance organization. Journal of 
Gerontology, 44:154-156.

Grad J, Salinsbury P (1968). The effects that patients have on their families 
in a community care and control psychiatric serviceÄA two year follow-up. 
British Journal of Psychiatry, 114:265-278.

Grossman L, London C, Barry C (1981). Older women caring for disabled spouses: 
 A model for supportive services. The Gerontologist, 21:464-470.

Gwyther LP, George LK (1986). Symposium:  Caregivers for dementia patients:  
Complex determinants of well-being and burden. The Gerontologist, 26:245-247.

Haley WW, Levine EG, Brown SL, Berry JW, Hughes GH (1987). Psychological, 
social, and health consequences of caring for a relative with senile dementia. 
Journal of the American Geriatrics Society, 35:405-411.

Horowitz A (1985). Family caregiving to the frail elderly. In C Eisdorfer 
(Ed.) Annual review of gerontology and geriatrics, 5:194-246. New York: 
Springer.

Horowitz A (1985). Sons and daughters as caregivers to older parents:  
Differences in role performance and consequences. The Gerontologist, 
25:612-617.

Houlihan JP (1987). Families caring for frail and demented elderly:  A review 
and selected findings. Family Systems Medicine, 5:344-356.

Johnson CL, Catalano DJ (1983). A longitudinal study of family supports to 
impaired elderly. The Gerontologist, 23:612-618.

Josephs, A (1992). Stroke:  An owner's manual. The invaluable guide to life 
after stroke. Long Beach, CA: Amadeus Press.

Kapust LR (1982). Living with dementia:  The ongoing funeral. Social Work in 
Health Care, 7:79-90.

Liptzin GB, Grob MC, Eisen SV (1988). Family burden of demented and depressed 
elderly psychiatric inpatients. The Gerontologist, 28:397-401.
 
Lyons W (1982). Coping with cognitive impairment:  Some family dynamics and 
helping roles. Journal of Gerontological Social Work, 4:3-20.

Maurer JR, Strasberg PD (1989). Building a new dream:  A family guide to 
coping with chronic illness and disability. Reading, MA: Addison Wesley, Inc.

Miller B (1987). Gender and control among spouses of the cognitively impaired: 
 A research note. The Gerontologist, 27:447-453.

Montgomery RJV, Gonyea JG, Hooyman NR (1985). Caregiving and the experience of 
subjective and objective burden. Family Relations, January:19-25.

Morris LW, Morris RG, Britton PG (1988). The relationship between marital 
intimacy, perceived strain and depression in spouse caregivers of dementia 
sufferers. British Journal of Medical Psychology, 61:231-236.
Morris RG, Morris LW, Britton PG (1988). Factors affecting the emotional 
well-being of the caregivers of dementia sufferers. British Journal of 
Psychiatry, 153:147-156.

Morris LW, Morris RG, Britton PG (1989). Social support networks and formal 
support as factors influencing the psychological adjustment of spouse 
caregivers of dementia sufferers. International Journal of Geriatric 
Psychiatry, 4:47-51.

Mortiz DJ, Kasl SV, Berkman LF (1989). The health impact of living with a 
cognitively impaired elderly spouse:  Depressive symptoms and social 
functioning. Journal of Gerontology, 44:S17-27.

Motenko AK (1989). The frustrations, gratifications, and well-being of 
dementia caregivers. The Gerontologist, 29:166-172.

Norris VK, Stephens-Parris MA, Kinny JM (1990). The impact of family 
interactions on recovery from stroke:  Help or hindrance? The Gerontologist, 
30:535-542.

Novak M, Guest C (1989). Caregiving response to Alzheimer's disease. 
International Journal of Aging and Human Development, 28:67-79.

Pagel MD, Becker J (1987). Depressive thinking and depression:  Relations with 
personality and social resources. Journal of Personality and Social 
Psychology, 52:1043-1052.

Pagel MD, Becker J, Coppel DB (1985). Loss of control, self-blame, and 
depression:  An investigation of spouse caregivers of Alzheimer's disease 
patients. Journal of Abnormal Psychology, 94:169-182.

Pagel MD, Elderly WW, Becker J (1987). Social networks:  We get help by (and 
in spite of) a little help from our friends. Journal of Personality and Social 
Psychology, 53:793-804.

Pett MA, Caserta MS, Hutton AP, Lund DA (1988). Intergenerational conflict:  
Middle-aged women caring for demented older relatives. American Journal of 
Orthopsychiatry, 85(3):405-417.

Petty D, Friss L (1987). A balancing act of working and caregiving. Business 
and Health, October:22-24.

Poulshock SW, Deimling GT (1984). Families caring for elders in residence:  
Issues in the measurement of burden. Journal of Gerontology, 39:230-239.

Pratt C, Wright S, Schmall V (1987). Burden, coping and health status:  A 
comparison of family caregivers to community dwelling and institutionalized 
Alzheimer's patients. Journal of Gerontological Social Work, :99-113.

Pruchno RA, Potashnik SL (1989). Caregiving spouses. Journal of the American 
Geriatrics Society, 37:697-705.

Pruchno RA, Resch NL (1989). Aberrant behaviors and Alzheimer's disease mental 
health effects on spouse caregivers. Journal of Gerontology, 44:S177-182.

Pruchno RA, Resch NL (1989). Husbands and wives as caregivers:  Antecedents of 
depression and burden. The Gerontologist, 29:159-165.

Quayhagen MP, Quayhagen M (1988). Alzheimer's stress:  Coping with the 
caregiving role. The Gerontologist, 28:391-396.

Rabins PV, Mace NL, Lucas MJ (1982). The impact of dementia on the family. 
Journal of the American Medical Association, 248:333-335.

Schultz RS, Visintainer P, Williamson GM (1990). Psychiatric and physical 
morbidity effects of caregiving. Journal of Gerontology, 45:181-191.

Shanas E (1979). The family as a social support system in old age. The 
Gerontologist, 19:169-174.
Silliman RA, Sternberg J (1988). Family caregiving:  Impact of patient 
functioning and underlying causes of dependency. The Gerontologist, 
28:377-382.

Soldo BJ, Myllyluoma J (1983). Caregivers who live with dependent elderly:  A 
national profile. The Gerontologist, 23:605-611.

Stone R, Cafferata GL, Sangl J (1987). Caregivers of the frail elderly:  A 
national profile. The Gerontologist, 27:616-626.

Toseland RW, Zarit SH (1989). Introduction to the symposium. The 
Gerontologist, 29:437.

When stroke strikesÄInformation for the family. United Stroke Foundation:  The 
road backÄA resocialization program. Stroke Association of Southern 
California, 2001 S. Barrington Ave., Suite 308, Los Angeles, CA 90025.

Whittick JE (1988). Dementia and mental handicap:  Emotional distress in 
carers. British Journal of Clinical Psychology, 27:167-172.

Winogrond IR, Fisk AA, Kirsling RA, Keyes B (1987). The relationship of 
caregiver burden and morale to Alzheimer's disease patient function in a 
therapeutic setting. The Gerontologist, 27:336-339.

Worchester MI, Quayhagen MP (1989). Correlates of caregiving satisfaction:  
Prerequisites to elder care. Research in Nursing and Health, 6:61-67.

Zarit SH, Toseland RW (1989). Current and future direction in family 
caregiving research. The Gerontologist, 29:481-483.

Zarit SH, Reever KE, Bach-Peterson J (1980). Relatives of the impaired 
elderly:  Correlates of feelings of burden. The Gerontologist, 20:649-655.

Zarit SH, Todd PA, Zarit JM (1986). Subjective burden of husbands and wives as 
caregivers:  A longitudinal study. The Gerontologist, 26:260-266.

==================

Love, Sex and Disability: Maintaining Interest and Intimacy

How Disability Affects Intimacy

Boldrini P, Basaglia N, Calanca M (1991, March). Sexual changes in hemiparetic 
patients. Archives of Physical Medicine Rehabilitation, 72:202-207.

Bray GP, DeFrank RS, Wolfe TL (1981, June). Sexual functioning in stroke 
survivors. Archives of Physical Medicine Rehabilitation, 62:286-288.

Burgener S, Logan G (1989).  Sexuality concerns of the post-stroke patient. 
Rehabilitation Nursing, 14(4):178-181, 195.

Coslett HB, Heilman KM (1986, October). Male sexual function: Impairment after 
a right hemisphere stroke. Archives of Neurology, 43:1036-1039.

Ford AB, Levine SB (1982). Sexual behavior of chronically ill patients. 
Medical Aspects of Human Sexuality, 16(2):138-149.

Fuentes RJ, Rosenberg JM, Marks RG (1983). Sexual side effects: What to tell 
your patients, what not to say. Rehabilitation Nursing.

Jensen SB (1992, June). Sexuality and chronic illness: Biopsychosocial 
approach. Seminars in Neurology, 12(2): 135-140.

Monga TN, Lawson JS, Inglis J (1986). Sexual dysfunction in stroke patients. 
Archives of Physical Medicine and Rehabilitation, 67:19-26.

Smith PC (1981). The sexual recovery of the stroke patient. Sexual Medicine 
Today, 6-11.